Here's a selection of information from patients & professionals to better understand Alkaptonuria (AKU) .
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All Alkaptonuria (AKU) Events
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5th International Rare Disease Day 2012
From 29 February to 1 March 2012
February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”. Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! United States participants can find more information here: http://rarediseaseday.us/
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RE (ACT) Congress
From 28 February to 2 March 2012
International Congress on Research of Rare and Orphan Diseases Basel, Switzerland
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1st International Congress on Research of Rare and Orphan Diseases
From 29 February to 2 March 2012
Gebert Rüf Stiftung and BLACKSWAN Foundation, both active in supporting research activities in the field of rare diseases, are preparing the first “International Congress on Research of Rare and Orphan Diseases – RE(ACT)” in 2012. It will take place at the Gehry Building on the Novartis Campus, Basel/Switzerland from February 29th to March 2nd 2012. A superb setting for stimulating learning, exchange and networking. The “RE(ACT) Congress 2012” will bring together world leaders and young scientists from both university and industry to present cutting edge research, to discuss results and to exchange ideas.
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Second ASID Congress of the African Society for Immunodeficiencies
From 8 to 11 March 2012
Since its birth in Casablanca and during the last two years, ASID has been very active establishing a network involving colleagues of different regions of Africa including North, West and South African countries. Four schools have been already organized in Casablanca, Dakar and Johannesburg. This second congress will be an excellent opportunity to strengthen the capacity of colleagues all over the continent to better diagnose and manage patients with PIDs. The commitment and contribution of international experts, societies and associations to this process is highly appreciated.
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6th European Conference on Rare Diseases & Orphan Products (ECRD 2012)
From 23 to 25 May 2012
MCE Conference Centre in Brussels, Belgium
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European Human Genetics Conference 2012
From 23 to 26 June 2012
Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The Society will encourage and seek to integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics.
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62nd Annual Meeting of the American Society of Human Genetics (ASHG)
From 6 to 9 November 2012
"We have 24 invited slots available and anticipate receiving over 120 proposals. We encourage you to provide as much information as possible in order to assist the Program Committee in their decision making. The ASHG 2012 Program Committee encourages the submission of debate or panel style sessions on thought-provoking or controversial topics."