Alternating Hemiplegia community

Alternating hemiplegia (AH) (also called alternating hemiplegia of childhood) is a rare neurological disorder.
 

Determination Bears Hope by AHCKIDS published 3 months ago

This is a video about 4 year old Matthew Wuchich, who is the "poster child" for the AHC Foundation, and son of AHC Foundation President Jeff Wuchich This video has the title of this post: www.youtube.com/watch?v=4F3qk9qT-tU

Imagine your child suddenly lost the use of one or more of their limbs for minutes, hours, even days. Imagine these episodes were often painful. Imagin...

Read more

Update International Workshop on Alternating Hemiplegia by A.I.S.EA published 4 months ago


The workshop will be held in Genova on November 11, 2011. Find the agenda here. The Workshop aims to disseminate knowledge on Alternating Hemiplegia through the analysis of the clinical, therapeutic, and instrumental aspects and the evaluation of the pathogenetic hypotheses, in order to promote further research on the disease.

The program of the workshop also includes the presentation of the latest scientific studies in Italy and abroad.
Participation is open to patients, researchers, representatives of public institutions, physicia...

Read more

Video: Tim suffers from Alternating hemiplegia of childhood (DE) by Anon published 4 months ago


Video in German language
For more on AHC in Germany, visit www.ahckids.de

Originally published online:

www.bild.de/ratgeber/gesund-fit/selten/tim...

Read more

A beautiful weekend that brought 14 families together by AHC France published 4 months ago


Family meeting, October 15-16, 2011, Paris
A highlight in the life of the French AHC association, the meeting was marked by the attendance of the Italian association,  and included the presentation of the IB.AHC project for a better knowledge of crises and treatments to apply to them.

Doctors who follow our association spoke about behavioral problems that occur in people with alternating hemiplegia (Dr Stéphane Auvin) in terms of frontal lobe syndrome and there was an update on the status of the research into the genes ...

Read more

Filters

Alternating Hemiplegia Recent Activity

  • -

    Update from Italy
    topic, published 9 days ago

    show transcript

    Dear all,

    With the new year well underway, I would like to briefly update you on the latest news about genetic research, mainly as developed after the International Workshop on Alternating Hemiplegia, held in Genoa on 11 November 2011.
    As you may recall, in parallel to the Workshop, together ...

  • -

    Sunna is getting 6 years old
    topic, published 13 days ago

    show transcript

    Hi Sunna,

    You're a big girl. For your sixth birthday I wish you all the best - especially health, luck and only sunny days. Learn to make the best out of your life as quickly as possible. At the beginning it was so difficult for me. I feel better now that I've learned that.

    gosia21

    02/09/2012

  • -

    1 in a Million Campaign Countdown- LET’S GET STARTED
    topic, published 13 days ago

    show transcript

    AHC Families and Friends,

    We need your help. Remember October, 2010 when we found out we were accepted for the Pepsi Refresh & we started gearing up for the big adventure that created the HUGE victory that has catapulted research & has given us renewed hope?

    Well, we have learned some...

  • -

    New podcast from Jeff at AHC kids
    topic, published 19 days ago

    show transcript

    Give this podcast a listen:

    http://www.mmipublicrelations.com/podcasts/entry/alternating-hemiplegia-of-childhood-foundation-president-releases-podcast-o/

  • -

    German article features AHC
    topic, published 21 days ago

    show transcript

    An article from “Bild” about Christian – an AHC Patient. Christian, from Berlin, is one of 30 people in Germany with "Alternating Hemiplegia"

    http://www.bild.de/ratgeber/gesund-fit/gesundheit/alternierende-hemiplegie-ahc-ihm-hilft-nur-schlaf-11634544.bild.html

    This article is in German. Us...

  • -

    Exciting News from AHC Foundation
    topic, published about 1 month ago

    show transcript

    Dear AHC Friends,

    It is with great excitement that I write today to inform you that last night the Board of Directors of the AHC Foundation approved a strategic plan for a major awareness/fundraising campaign ( the “1 in a Million” I have referred to previously). We are committed to our goal ...

  • -

    2012 – The year we found a cure for Alternating Hemiplegia?
    topic, published about 1 month ago

    show transcript

    Will we find a cure for Alternating Hemiplegia in 2012?

    We have all the capabilities to at least find the cause of Alternating Hemiplegia. In the last years and especially in 2011 we have laid the foundation to make 2012 a major stepping stone for Alternating Hemiplegia. With leading associati...

  • -

    MERRY CHRISTMAS
    topic, published 2 months ago

    show transcript

    Let us celebrate these Holidays with Peace on earth,
    joy in our homes and love in our hearts.

    Merry Christmas to all of the members of this community.

  • -

    Merry Christmas and a happy new year
    topic, published 2 months ago

    show transcript

    http://www.ahc.is/en/2011/12/merry-christmas/

  • -

    Better support in Sweden for people with rare diseases and their families!
    topic, published 2 months ago

    show transcript

    Thanks to greater competence and exchange of experience, people with rare diseases will get better and faster help from the community.

    http://www.agrenska.se/Global/Bilder%20Agrenska/Press/pressrelease--2011-12-14.pdf

    Provided by: Monica Hedman