Behçet’s Syndrome community

Behçet’s Syndrome is a chronic, rare condition caused by disturbances in the body’s immune system.

Behcet's eye or not? by isabellelebras published 23 days ago

Hello Behçet's community!

I would like to know the stories of people who have had symptoms in the eyes. I hope my message finds you in relatively good "health" and also without too much pain. This is not my case today and I have a concern for several days. Indeed I have headaches every night and especially a pain behind the eyes, mainly the right eye. I wonder if this should a...

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My BD Journey by camille published about 1 month ago

This is a quick overview of my journey toward a diagnosis. There is so much more to a person's BD story than what can be comfortably contained in a readable format. I don't want to be boring by rambling endlessly - just informative. If anyone has any questions, or would like more information/clarification about anything I say in the "story" below - please email me. I wou...

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Behcet's disease at work by isabellelebras published about 1 month ago

I'm having problems now because of sickness. In 1998, I became a family worker, I accompanied the mothers to the birth of their children at home, I accompanied the children during the illness of their parents, and in their psychological and moral education. I supported parents in budget management in their separation, or the death or illness of their child. I did this job until 2008. Then ...

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My journey by lililo published about 1 month ago

Diagnosed with Behcet’s Syndrome in November 2011 after many different wrong diagnoses over several years. There was a suspicion of Behcet’s disease in June 2010 followed by a diagnosis of invasive cervical carcinoma. The suspicion got confirmed after a treatment of combined chemotherapy confirmed for cancer including cyclophosphamide which made all my Behcet’s symptoms disappear (ulcers, articular pains, skin problems) which came back 6 months after the end of the treatment and then confirmed by a biopsy of the skin and numerous analyses.
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Behçet’s Syndrome Recent Activity

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    Help! Bechet's In Alabama
    topic, published 1 day ago

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    I have had this horrible disease for about 4 years now. I have seen so many doctors and specialist.I meet a rheumatologist here in Dothan Al that diagnosed me.He changes my meds up all the time and I now he is doing the best he can with what info he has.I just wish there was a doctor close to me ...

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    Behcets doctors???
    topic, published 1 day ago

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    Is anyone here from the greater Vancouver and Fraser Valley area in BC Canada.I need a doctor who can do something for me...my family doctor has become very unwilling and unknowledgeable in helping me find a doctor who has dealt with Behcets and has current expertise.Is there anybody who knows a...

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    Symptoms of Behçet’s Syndrome in a representative group of adults in the UK.
    document, published 2 days ago

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    Introduction
    The report provides epidemiological data that reflects the needs of adults with Behçet’s Syndrome living in the UK. The findings will help (i) commission and manage treatment demands based on sound epidemiological data; (ii) develop health care strategies targeting relevant symptoms...

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    New Insights in the Clinical Understanding of Behçet’s Disease
    document, published 2 days ago

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    Behçet’s disease is a chronic relapsing multisystemic inflammatory disorder characterized by four major symptoms (oral aphthous ulcers, genital ulcers, skin lesions, and ocular lesions) and occasionally by five minor symptoms (arthritis, gastrointestinal ulcers, epididymitis, vascular lesions, an...

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    bonjour
    topic, published 2 days ago

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    Bonjour les amis, je viens de créer un blog que je vais essayer de mettre à jour régulièrement pour que le benifice soit général. voici l'adresse:

    behcetalgerie@blogspot.com

    Bon courage à toutes et à tous.

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    anybody with Behcet's syndrome from Cyprus???
    topic, published 11 days ago

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    My name is Clery. I come from Cyprus and I was diagnosed with Behcet's syndrom 7 years ago. I have never met or talked with any other patient with Behcet's syndrome. I will be "glad" to meet or talk to somebody with the same problems as me!
    I was suffering without knowing what my problem was.
    ...

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    Extended interview with a Behcet's Syndrome patient
    topic, published 14 days ago

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    Jimmy Palmieri is in constant physical pain. He has Behcet’s Syndrome, a rare disease that affects an estimated 15,000 people in the United States. It’s an autoimmune disorder that causes a host of symptoms, including chronic headaches, fevers, nausea, severe joint pain, ulcerations and skin les...

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    ear pain
    topic, published 30 days ago

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    OK, ENT wants to do ABR, VNG and ECochG tests. Neurologist says he figures it is Behcets rather than tumor and wants to try treating symptoms with Valium before doing an MRI. Also says he does not think we will get much info from tests. I am scheduled to see my regular doc Thursday; I will use...

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    Ear Pain
    topic, published about 1 month ago

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    do not know who might help...

    I have had ear pain for about 6 weeks. First it was diagnosed as inner ear infection, then outer ear infection. It did not get better with medication. 2 weeks ago I had sudden, intense vertigo and nausea. I went to ER, concerned that I was having meningitis again....

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    Bechets
    topic, published about 1 month ago

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    I was diagnosed with Bechet's earlier this year because of mouth sores and very low white count. Well for the last 2 weeks I've been having issues with nausea and vomiting on a daily basis which is very, very draining. Have an appt with a GI Doctor this coming week and have already discussed t...