Cystinosis community

Cystinosis is a lysosomal storage disease characterized by the abnormal accumulation of the amino acid cystine.

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Upcoming Conferences by ValerieH published 5 months ago

The Cystinosis Foundation is pleased to host the 7th International Cystinosis Congress in France during the summer of 2012 and the 1st International Cystinosis Congress in Brazil in October, 2012. Keeping in accordance with our history of hosting unique and highly regarded conferences that offer meaningful experiences for the entire family, the 2012 gatherings are sure to be memorable experienc...

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Video: Mystery Diagnosis Cystinosis by Discovery Health published 7 months ago


 


From Discovery Health series: health.discovery.com/tv/mystery-diagnosis/
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Cystinosis Support Group in the Northeast of Brazil by Anon published 7 months ago


In 2011 we began a support group for individuals with cystinosis and their families. There are currently more than 100 people registered with cystinosis, including children and adolescents in the Institute of Children's Hospital of the University of São Paulo, but there are other known cases in the country which are not treated in São Paulo. Taking into account the lack of ...

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Cystinosis Research Foundation 2011 Video by Cystinosis Research Foundation published 8 months ago


The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as their 2011 promotional video. This video gives a brief background on ...

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