Familial Mediterranean Fever community

Familial Mediterranean Fever (FMF) is a hereditary autoinflammatory disorder.

Fortunately it has been a long journey. by jazito published 1 day ago

Living with FMF for 45 years... Christmas Eve 1968. I was doubled over with severe pain in my abdomen and was running a fever of 102 degrees. No amount of blankets could take away the chills and shivering as I lay in bed. My visit to the emergency room ended with a diagnosis of semi-acute appendicitis. This was followed over the next year with several more attacks some of which caused trips to the emergency room and some of which we just tolerated. On the fifth trip to the emergency room a friend of my wife's called in a surgeon who...

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Donna's experience with FMF by Donna published 13 days ago

Started at the early age of 2. I was 2 when I started getting attacks. Just like other members, was sick with high fevers, vomiting excrutiating pain on the 2nd day and total weakness the 3rd. day. At the same time my 2 sisters were also suffering the same symptoms. My doctor finally (after having appendix removed and a million tests and hospitals)said that I will out grow it.
But of course ...

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From Basepairs to Bedside: Adventures in the Genomics of Inflammation by Dr. Dan Kastner published about 1 month ago

 


Dr. Kastner on... "finding the gene for Familial Mediterranean Fever, Kastner says, "This was back at that wonderful time, the dawn of the Human Genome Project, when with positional cl...

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Finally Diagnosed by grover722 published 2 months ago

I was finally diagnosed with FMF on November 2010, at the age of 38. Since I was about 2 years old, I have had health issues. By the time I was about 14, I did not seem to be as sick, so doctors just thought whatever I had went away.

Over the years I always had severe health issues but I guess I just tried to ignore them until sometime in 2005. I started getting so sick that I couldn't ignore it anymore. They took my appendix out and that didn't help and I just kept getting admitted to the hospital with fever, pain and whi...

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Familial Mediterranean Fever Recent Activity

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    Colchicine Access in the USA
    topic, published about 24 hours ago

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    Are you a United States FMF patient having trouble with accessing a suitable brand of Colchicine? We would like to hear from you, please message me here or at robert.pleticha@eurordis.org

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    Finding a doctor
    topic, published 1 day ago

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    What specialists are the best for FMF? I have an internist and have also gone to a rumatologist, neither has any idea what to do or how to help.

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    Source for colchicine
    topic, published 5 days ago

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    I started taking Colcrys about Nov. 2010. For the first 2 months I thought it was a miracle drug---then it was all downhill from there. I discontinued taking it 1 week ago. Although it controlled pain to a degree, the side effects are bad. It is very dehydrating---I lost a lot of weight---just s...

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    A doctor in Montreal
    topic, published 8 days ago

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    I need your help, I am planning to immigrate to Montreal this summer and I have two children (24 and 18) diagnosed with FMF. I need an address of doctor or clinic or hospital that my children can follow regularly with them specially when my doctor, here in Cairo, told me that my son might need to...

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    Colchicine and Children
    topic, published 10 days ago

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    Hi. I am the mother of 2 children with FMF. Our son was diagnosed at 7 yrs old, and prescribed Colchicine along with Phenobarbitol (to control the side effects of Colchicine). The doctor started him on a dosage of .6 mg and to increase at intervals. We noticed that when he began the medicatio...

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    Maladie périodique ?
    topic, published 12 days ago

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    Hello, my nine-year-old little sister was diagnosed FMF approximately four years ago. At first she suffered from severe abdominal cramps followed by fever and vomiting, and this on a weekly basis. When the pediatrician diagnosed the disease he prescribed (colchicine) that reduced her pain and he...

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    AFFMF NEWS
    topic, published 12 days ago

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    The AFFMF (French Association of Familial Mediterranean Fever) has a page on its site aimed at English-speaking countries.
    http://affmf.jimdo.com/accueil/the-affmf-in-english/
    AFFMF - 20 rue de Madrid 75008 Paris
    phone: 01 48 74 41 71
    email: affmf@orange.fr

    L’AFFMF (Association Française d...

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    Donna,
    topic, published 12 days ago

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    MANY FMF sufferers are having problems with colcrys. Please join our support group at:
    FMF Support mailing list:
    fmf_support-subscribe@yahoogroups.com

    Nancy

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    First Post
    topic, published 13 days ago

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    I'm interested in hearing how everyone is doing with the Colcrys brand colchicine?
    Aside from the biggest painfull side effect of it.....THE COST! Is anyone experienceing any side effects?

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    colchicine vs colcrys
    topic, published 13 days ago

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    My husband was on Colchcine for 17 years, had 1 or2 attacks. Since starting Colcrys he had 2 attacks during 0.5 year. Did anybody experienced such a thing?
    Vickie