Hereditary Spastic Paraplegia (HSP) is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.
Family misdiagnosis by waddles1 published 27 days ago
Always assumed our Mother had MS but after being diagnosed with HSP did some digging and found out her father had 'paraplegia.' My sister, Pam was diagnosed with MS about 15 years ago. The assumption was that as our Mother had MS she had inherited it. Our mother died in 1974 and had symptons since the early 1950's. When I started to trip and walk a bit stiff legged, I was diag...
“Quality of Life” Conference Photos by Dorthe published 2 months ago
The conference took place in Nov. 2011 in Copenhagen. A summary report can be found here.
Jesper Mogensen, Maria Marcus and Elsa Bencke
The audience
The audience
Ingerid – Euro-HSP treasurer – and Kari came from Norway
The audience
The audience
Jesper Mogensen, Maria Marcus and Elsa Bencke
Jesper Mogensen
A happy brain because of physical exercises
The chairperson of the conference, Palle Nielsen, and the vice-chair Dorthe Lykke taki...
"Quality of Life" by Dorthe published 3 months ago
A summary from Euro-HSP on their “Quality of Life” Conference
Nov. 5, 2011
The first speaker was brain researcher, Prof. Jesper Mogensen. He pointed out that it is not the brain that gives quality of life to us but it is we who affect the brain. A neurotransmitter called dopamine is released in the front part of the brain with pleasure, and quality of life is affected by ...
My Son's Story by TinaGMc published 3 months ago
My son Sam was just diagnosed with HSP type 11. We live in northern California near San Francisco and are looking for information and support.
Hereditary Spastic Paraplegia Recent Activity
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4 year old son with muscle weakness
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topic, published 1 day ago -
5 Year Old Daughter Diagnosed with HSP
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topic, published 3 days ago -
Looking to talk to people with mild hsp and share experiences
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topic, published 3 days ago -
Progression of disease
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topic, published 3 days ago -
abnormal muscle biopsy no slow myosin heavy chain
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topic, published about 1 month ago -
Physical Therapy in Hereditary Spastic Paraplegia (EN)
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document, published 2 months ago -
La Paraparesi Spastiche Ereditarie (IT) HSP (EN)
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document, published 2 months ago -
QUALITA’ DELLA VITA E PROMOZIONE DEL BENESSERE NELLE PARAPARESI SPASTICHE EREDITARIE (IT)
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document, published 2 months ago -
Le Paraparesi Spastiche Ereditarie autosomiche dominanti (ASHSP): analisi della variabilità intra...
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document, published 2 months ago -
Paraparesi Spastiche ereditarie: dal sintomo alla diagnosi (IT)
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document, published 3 months ago